Patient.info has taken on the darker side of skin disease not generally discussed, a psychological perspective that is very real for those who suffer from the physical effects as well as cope with the stigma that can accompany it. “Skin disease is often obvious and very visible to others. Those who have skin diseases have not only to cope with the effects of their disease but also the reaction of others to their condition”, says Dr Laurence Knott , of Patient.info, comparing it to the ignorance and prejudice that has also been attached to millions of people who suffer from mental illness and sexually-transmitted infections for centuries.
The publication calls on the medical profession to “combat stigma with information and education” and hopes the summary will impact the “quality of life” that can be profoundly improved when the stigma for conditions such as eczema, acne, rosacea and vitiligo and other common or rare skin disorders are brought to light. The medical community is asked for research findings, information, and education to be “extended to those with skin diseases, their families, schools and the wider community.”
Acne can have “major psychological effects”, according to a study that found “acne can cause psychological abnormalities including depression, suicidal thoughts and anxiety, psychosomatic symptoms, including pain, discomfort,
embarrassment and social inhibition”. Research backs effective treatment and shows it can accompany the improvement of “self-esteem, affect, obsessive compulsiveness, shame, embarrassment, body image, social assertiveness, and self-confidence”.
In a referenced survey of patients who suffered from psoriasis, participants revealed that they “deliberately avoid swimming, wearing short sleeves, shorts or skirts because they feel that people regard them as ‘untouchable’ or ‘contagious’”. Playing sports was also reported as a problem, as well as being bullied. A polish survey found that “disease severity was related to impact on employability and family finances.”
Studies also found more psychological negatives in the available treatment options for skin diseases, citing “the application of creams or pastes to large areas of the body is time-consuming and can require help from others. Medications can be unpleasant to apply – for example coal tar is smelly” and some have to be applied overnight, which can stain bedding and clothing.
Patient hopes that through their reporting, “Education can be given not only to individuals but also within schools and to the wider community. Campaigns to enlighten and educate serve to encourage patients to seek help and to raise awareness and greater empathy in the wider community.”